The sad truth of the matter is that we are not professionals. We are just willing to lend our minds, hearts and ears to your struggle. We know how it feels to keep making the same mistakes thinking the whole time that "today will be different"- only to land you in the same spot you were before.
Those who deal with chronic dysphoric health conditions like: emotional exhaustion, ADHD, CFS, ME, Lupus, Severe Depression, Bipolar, Cyclothymia and many many many more are just a few of the chronic illnesses we're talking about.
Mostly the "fake" diseases. The ones they have no tests for, so they just roll their eyes as we cry and stand by, hands in pocket as we suffer. This upsets me to no end. Not only is there no respite from these conditions, the largest part of the medical community denies us testing and resources because they cannot or will not see our struggle.
I'm tired of paying money to therapists who don't care. I'm tired of trying so hard it breaks me only to show up for therapy to be told I'm NOT TRYING.
I'm tired of hearing severe, life-changing, life ruining FATIGUE doesn't exist. I'm tired of having a hard time sitting up, breathing, walking, climbing stairs, doing laundry, bathing myself, washing dishes ---- I'm tired of feeling guilty when we are NOT even close to being "lazy".
I'm tired of being told significant weight gain is not a severe side effect. I'm tired of being berated by doctors who have the nerve to tell me I'm the fool for expecting the medication THEY PRESCIBED to work!!!!
I'm tired of being treated with the same distain they regard drug addicts with --- (and I would also like to say that due to all of the taboo things you can't or shouldn't say to your doctor, chronic drug abuse is one of them, no wonder addicts don't ask for help). But we are adapting to a situation THEY CREATED and I'm tired of it. Drug abuse in many cases (in my opinion) is just a symptom of a larger sadness or unmet need.
If people could get REAL RELIEF FROM REAL MISERY, less folks would feel the need to drink themselves numb, or "take the edge off" or consciously plan out a full on relapse with furious delight.
People are killing themselves because clinicians treat us like garbage and there is no escape- No one has any NEW information. No article has been truly informative for sometime. We're just stuck---- or are we?
What if we ”help” ourselves?
What if we put our heads together use our resources and find another way.
I know we've all spent hours online researching, trying to fix our idiosyncrasies. Trying to figure out how to mask our neurodivergence. But maybe we are not the problem.
In fact, I'm almost certain we are not the problem. We are nature's response to a problem that has been present for quite some time now. We are the empaths, the traumatized, the ones who are afraid, those who know better, those who prefer the darkness, the lonely, the forgotten and the furious.
But we don't have to be. I've spent 2 years researching all flavors of affective disorders and anything I could find that might be connected to a chemical reason for supreme sadness, trying to figure out how to help myself and I've barely even scratched the surface. At the same time, I've learned so, so, so much. Nothing has fixed me yet, but all I can do is keep trying.
Let's stop being alone and forgotten.
Let's figure this out together. You are not alone, you just need an advocate.💜
This is by far the best hard-core, straight up no bullshit website I have ever read. I am currently in school for human services with a concentration in substance abuse. My goal is to do exactly what it is that you are doing! There are so many individuals that have fear and are ashamed of themselves for asking another human being for help. It is pathetic that our society lets the failure of our city and state's policies define our communities. I am a recovering addict and my husband is a diagnosed shizoaffective bipolar schizophrenic. Judgement across the board is disgusting without knowing who we are. I know what failure feels like, but I also know what success and winning feels like. Our suicide rates in our country is unacceptable. Our loved ones, friends, and even the stranger that passes you on the street are essence of what we are. Being divided into labels and the constant stigma is childish and shows ignorance. Everyone has a story and we never know what chapter we will be walking into in an individual's life. Being kind and supportive takes no energy at all like some of our parents use to say to us when we were kids, "if you do not have nothing nice to say, do not say anything at all!"
ReplyDeleteThank you for the kind words and support. We are doing our best to open up lines of communication between kind, caring physicians and patients in need. Thank you again for your support! Hit is up whenever! 💜🤗
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